Holiday Dialysis @ Nephroplus

‘Who said you cannot travel on dialysis? People on dialysis CAN and SHOULD travel! And what better way to experience the joys of a relaxing holiday than the professional and world-class quality of NephroPlus?’

The above is what ‘Nephroplus’ (my dialysis partner), says to encourage all its patrons. I have always been a travel enthusiast. Have roamed around the globe and have climbed a snow capped mountain peak at 14,000 feet. I won’t let my condition stop me from travelling.

Some facts about me:

• 2017 is when I got to know about my ESRD at age 38.
• 2019 is when I got the gift of life from my dear mother in law ‘Asha’ and had my preemptive, ABO compatible but 0/6 HLA match transplant.
• 2021 is when life decide to throw a curved ball and my transplant failed.
• 2021 May onwards I have been on Hemo-Dialysis at Nephroplus, Hyderabad.

But life needs to move on and life needs to be lived. I have 2 lovely kids (Ishaan & Tishya) and the best life partner God could have given me(Swati). They are my strength.

My First holiday during Dialysis (Goa):

• After being stranded at home due to the pandemic, in October 2021, we decide we will go to Goa. I did not plan to get dialyzed during the trip. I was double vaccinated at this time. 
• I got dialyzed on a Friday and then flew to Goa the same day. We spent 4 nights at Goa & came back to Hyderabad on Tuesday. I immediately went to my dialysis center to get dialyzed. The holiday was loads of fun but I want to focus on what went right and what went wrong in a Holiday for a dialysis patient.
  
  
  

First what went right:

• I planned my diet before the trip for at least 2 weeks. Eating strictly low phosphorus low potassium diet.
• Got my tests done before travel, and confirmed that my potassium and phosphorus are in control.
• I was also watching my dry weight to ensure I am closest to my dry weight.

Now, what didn’t go right:

• As I traveled on the same day right after dialysis, during the way to airport and through the flight I felt the feeling  of ‘crash’.
• I gained 5 liters over 3.5 days. Thankfully, this didn’t cause any issue to me. But so much water gain can cause breathing issues and oedema.
• I went for high UF targets and tried to reduce the excess fluid in body by targeting around 4 liters per session in the week after returning to base. This caused heavy feeling of ‘crash’, sugar drops, low BPs and vomiting during or after Dialysis.

      My learning’s:

• Don’t travel on day of dialysis. You want to save the few extra hours of holiday but remember you need to enjoy the holiday.
• Get dialyzed during your holiday… you are still a kidney patient
• Eat responsibly during your holiday … your body is not on holiday.
• Go easy on your body during dialysis, after holiday. Don’t set aggressive dialysis UF targets to catch up. Dialysis has its limits and our body has its limits. Don’t challenge your body.

 

My Second holiday during Dialysis(Bidar):

Armed with all the learning’s from my 1st holiday, I planned a weekend trip to Bidar in November. This time it was a road trip and it was my sons birthday that we were celebrating.

    This time we ensured that:

• I do not travel on the dialysis day. This helped me enjoy the road trip and be active with my family while travelling.
• I also ate more responsibly being reminded by my lovely wife who keeps my gluttonous instincts in check.
• As I didn’t gain a lot of fluid weight, I did not have challenges getting back to my dry weight. I went for UF targets of 2.4 - 3.0 liters.

 

My Third holiday during Dialysis(Kullu-Manali):

It was the summer of 2022 and the heat in Hyderabad was killing us. Naturally the thought of holiday in the hills came to mind. Now after spending the last 10 years in Hyderabad hills to us have become synonymous to Ooty, Coorg, Munnar..! These are beautiful places and a must visit for all travel enthusiasts. Swati and I have spent our early years of marriage in Gurgaon and back then, hills meant - Shimla, Manali, Auli, Dharamshala. The heat of the summer of 22, forced us to get more daring and push our limits.

This time the destination planned was Kullu-Manali. It was our 17th Marriage Anniversary.  We also have family in Gurgaon and Meerut, so the plan was to go to Manali and then visit family and then return to base.

We knew this would be challenging as this involved flying to Chandigarh, a  2 way, road trip through the snaky mountains roads of Himachal(each side 10 hours each), extreme cold weather of Lahaul, a train journey from Chandigarh to Delhi and the 46+ degrees in Delhi. Additionally such a trip usually requires a lot of planning as it tends to be a long 7-10 day trip.

We started planning our trip with a call to the Kullu Nephroplus center. The welcoming voice of 'Dinesh' a lead technician, immediately put me at ease. Post a few questions, he blocked the 2 slots I will need on a Monday and Wednesday during my stay at Kullu-Manali. Slots were in the evening at 4:00 pm as the earlier day slots were already blocked for regular patients. This was okay for us. We then booked our tickets and hotel and started planning our itinerary. Our objective was to have a trip full of adventure activities and as a family play in snow for the 1st time together.

• 22nd Friday - Went for my regular dialysis slot at 11:00 pm and came back home and finished up my office wok and slept.
• 23rd Saturday - 4 of us took a morning flight from Hyderabad to Chandigarh reaching at 12:00. Immediately we started our road trip and reached Manali at 12:00 midnight. We stopped at couple of places for food and breaks.

• 24th Sunday - We were greeted on our Anniversary with the blessed views of the snow capped mountains of the Hampta-Pass from our window. We did River Rafting in the chilly waters of the Beas, shopped on Mall Road & enjoyed a Family dinner in the laps of the mountains.

                        

• 25th Monday - We travelled to the Lahaul side through the Atal tunnel(Rohtang) to a place called Khoksar. On the way we did Zip-Lining over the Beas river. Khoksar had huge patches of snow which must have fallen a couple of weeks back. We did snow tubing, skiing & a lot of sliding on the snow. The kids threw snow balls at each other and at us and occasionally got a few back at them. The weather in the mountains are unpredictable. It suddenly started snowing in the mountain peak and down in the valley (where we were) it started raining. A cafe provided us shelter along with the much needed Thukpa, Momos and Maggi in the hills. We returned to the hotel by 3:00 pm & I left for Kullu where Nephroplus has opened their dialysis center in July 2021.

Dialysis in Kullu:

The journey from Manali to Kullu takes 1 hour and it took us some time to find the centre. It’s a 8 bed center. What i loved about this place is that as soon as I walked in, I felt at home. The ‘Nephroplus’ branding, the same posters, the technicians in their familiar green outfits all were reassuring me that … all will be fine. The ever smiling and helpful technicians immediately put me at ease as I saw that the process for dialysis is absolutely standardised by Nephroplus. Great job Nephroplus. Kudos to the Center Manager, Billing person, technician 'Shivali' and the helpers who had stayed back as I was the only one at a 4:00 pm enjoying a ‘Holiday Dialysis’.

• 26th Tuesday - We visited all the Manali local tourist places, ate at the famous cafés, shopped in Mall Road and had a full day of family fun.
• 27th Wednesday- We went for paragliding this day. Amazing adventure and not at all scary. Should definitely try it. Also got dialyzed at Nephroplus, Kullu. My son got dehydrated and had to call for a doctor. He felt better after the nights rest and 2 injections.

   

• 28th Thursday - Started our 10 hour long journey back to Chandigarh. Must mention that our kids were an excellent support during this entire trip. We stayed the night at Chandigarh.
• 29th Friday - We took the early morning chair car train to Delhi. The heat in Delhi as we stepped out of the train felt like standing in a brick kiln furnace. Meeting Parents on both side was a joy of its own kind.
• 30th Saturday - I had blocked a dialysis slot at Nephroplus, Fortis hospital. Fortis is a very big and plush premium hospital catering to the affluent folks of Gurgaon. Getting dialysed at this center reminded me that the condition we share, does not know the bank balance of any individual. Also saw the same scenes that you see at every Dialysis center. Active technicians, family waiting, patients resting and getting treated.
• 1^st Sunday - Meeting my cousin sister and my elder brother and their families was so refreshing as we discussed past memories and cherished what we have together.
• 2^nd Monday - An early morning flight took me to Hyderabad and I rushed to my dialysis center at Nephroplus’s Citizen Hospital branch. Was greeted with the usual smiling faces of the technicians who wanted to know all about how the trip. I am blessed to have this center and such lovely technicians so close to my home. Also met my doctor Dr. Seerapani Gopaluni. Got my post trip tests and my session.

This time as I had not missed my ‘3 per week’ dialysis schedule, it didn’t gain too much but we stuck to a 2 week catch up plan, setting UF targets of 2.4-3.0 liters.

Today is the 16th Monday, and as I lay in my Dialysis bed and the machine purifies my blood and sets me up for another power packed week in the office and home, I wanted to take this opportunity to write to all of you sharing my adventures with ‘Holiday Dialysis’.

As Nephroplus says - ‘Simply decide where you want to go and let us know. We will make sure you get high quality dialysis at your holiday destination at our centers.’ Please plan ahead of time and work with your dialysis center manager to make the necessary arrangements for your dialysis.

My learning’s:

• Never miss your session during holiday
• Eat responsibly with an occasional treat. Portion control is critical.
• Plan your holidays in advance so it is not so expensive.
• Research a lot to understand what can go wrong and what will you do in times of crisis.
• Carry your medical file and reports and also in soft copy
• Share your details and complexities/needs (if any) with your holiday dialysis technicians.
• Instead of water, try sipping on ice when you can during your trip.
• Call up the restaurant in your hotel and ask them to make a low sodium khichri for a few meals to ensure you are balancing your intake.
• Explain your needs to your family and plan your itinerary around your dialysis session.
• Plan your expenses… there are multiple options to reduce travel expenses and early bookings and alternate planning can reduce expense considerably.
• Don’t take excessive risks but also know what risks are okay to take. Paragliding, River Rafting, Zip lining, Skiing all can be dangerous but shouldn’t limit us due to our condition.

My next adventure is planned in June: My work requires me to travel to Orlando, Florida in the United States. Looking forward to a new experience of International Holiday Dialysis.

Few other trips planned are Rajasthan during Monsoon and Kashmir in winters this year.

Thanks for reading through and I hope you found something which motivates you to pursue holiday travelling with a dialysis schedule. Travel is possible in all budgets and careful planning can help us get there.

I strongly believe that God has given us this phase of life to cherish and enjoy. Whilst we all have responsibilities of family and work. It’s important that we keep planning for - “What’s Next” and strive to keep our journeys exciting.

Wish you all ‘Happy Travels’ and please feel free to WhatsApp/SMS me if you wish to discuss something from the above.

Biswajit Roy

Ph: 9676251447

Saw this amazing Quote at  the back of a truck on our return from Manali, which truly sums it up for me. 

"Jagritah..."

Did the Matrix have any truth..? Did Neo really wake up to the greater truth..? Are we really sleeping? These questions kept bothering me since I saw Matrix a few years back for the first time and somehow I kept getting signs this last year which kept bringing my mind back to these questions...

Looking back at the past 29 years, I try & think of all events that have happenned & have played an important role in shaping me & my mind, a question that keeps bothering me always is.. "What is the real reason for our existense?" So is there really a field where you & I are being grown, waiting to be fed intravenously to the machines one day? Definitely the Wachowski brothers did a great job of fool proofing the story & got a winner out of it, but can it be true? Doesnt seem likely... Then what is the truth?

How is it that a new born knows where to find the ever nourishing colostrum? How does he learn to walk & not fly? How is it that he knows what is blue & what is red? Why dosent he see a new colour? How does he start sensing what all other humans sense? Why does he get conditioned by society to see the earth as everyone else sees it? Why is it that at a certain stage he sets out to achieve something in life? Why is it that something in life becomes his prime objective? And then a stage comes when he falls in love with a woman... why? & then desires to have a family.. Why? Why does he then take the pain of bringing up the child & watch him/her repeat the entire life cycle once again? Why does he do all that is possible to ensure that this child gets all that he/she would ever need? Why does he ensure that this child grows to be a great human being? What is this need of leaving behind a name? Is it all scripted, then? My grandfather did say, that our fate is all written in God's own book. What book?

There arent answers which answer these questions, but the one thing that thinking about all this has helped me realise, is that every life must have a purpose. After all we can't just be living the programmed way... But havent I just been living the programmed way all these 29 years? So what is it that one should do? Live a nomadic life? Break all the patterns? Do the unacceptable? Question societal norms? Go to the Himalayas? How will that help? Unless I know what is the reason for my existense, until I know the objective of life, how do I break the programme? What will break the pattern? Should one break the pattern or think about it... or is it aginst Gods will? Didn't the machines want us not to wake up?

So am I still sleeping..? Or is this my awakening...?